Work Package 1: Experiences of managing breathlessness

Physicians attitudes and experiences of managing breathlessness in palliative, respiratory and end of life care

Lead partner: Uniwersytet Mikolaja Kopernika w Toruniu (UMK)

WP1 will conduct an online survey to map the experiences, views and practices currently underway in the management of refractory breathlessness in respiratory and palliative care centers across Europe. It will also identify influencing factors on breathlessness management, including knowledge on international guidelines and access to specialist palliative care.

The target group for the survey are respiratory medicine and palliative care physicians. The survey questionnaire was developed based on a scoping literature search, the expertise of the project group and questions used in previous national surveys. It has been piloted by 30 experts from different European countries. 

Members of European Respiratory Society, European Association for Palliative Care and Palliative Care Formulary will be invited to complete the survey.

Learn more about the survey which can be completed in 10-15 minutes here.

The findings will be submitted for publication in late 2019.