Improving the situation of people affected by breathlessness

Upcoming webinar: The health and caregiving experiences of parents of children with life-limiting and life-threatening conditions

The 5th webinar in the series organised by the NIHR ARC Palliative and End of Life Care National Leadership forum will take place as follows:

Title: The health and caregiving experiences of parents of children with life-limiting and life-threatening conditions
Date: July 8th, 2025
Time: 11:00 am – 12:00 pm
Location: MS Teams (Online)

The webinar will be chaired by Professor Morag Farquhar, and the speakers are Professor Lorna Fraser, Julie Russell and Dr Victoria Fisher. It is free to attend, but please register at: https://arc-sl.nihr.ac.uk/events-training/events-training/webinar-health-and-caregiving-experiences-parents-children-life

For more information on the forum and recordings of previous webinars, please visit: https://arc-sl.nihr.ac.uk/research-and-implementation/our-research-areas/palliative-and-end-life-care/about-our-palliative-1

← Return - General

Click here to subscribe to our newsletter

News

New Publication alert

11 Nov Category: General

New paper led by Dr Peter May and colleagues and published in BMC Health Services Research examines the cost-effectiveness of repurposing mirtazapine for severe breathlessness in advanced respiratory disease. Using data from the multinational BETTER-B trial, the study found that mirtazapine did not improve quality of life and increased overall costs — with only a 1–2% chance of being cost-effective.

More →

Publications update!

23 Oct Category: General

A new paper, "Prevalence and correlates of breathlessness in adults: an umbrella review and updated systematic review with meta-analysis in general and clinical populations" has been published by Cheng et al. This review synthesised evidence on the prevalence of breathlessness, its correlates and assesment methods across general and clinical populations.

More →

National Palliative and End of Life Care Research Incubator

30 Sep Category: General

Professor Irene Higginson spoke at the launch of the National Palliative and End of Life Care Research Incubator which took place on 23 September. The incubator will support the development of researchers in palliative and end of life care through events, networking and collaborations, and you can read more about it here: https://www.pri-uk.org/ and watch the launch event here: https://vimeo.com/1122146443/7de97823fe?share=copy Professor Higginson spoke alongside Kathy Rogers and Kieran Potts on the scope and opportunities of the incubator.

New paper from the BETTER-B trial published.

26 Aug Category: General

A new paper: Motivations and experiences of patients with respiratory disease and their caregivers in a multinational trial of mirtazapine for severe breathlessness: a qualitative study (BETTER-B) has recently been published online. Please go to the publication page to view.

Page 1 of 17> >>

Tweets by CSI_KCL

Next page: Project