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We are delighted about CORDIS_EU journalists’ coverage of the EU funded BETTER-B study led by Prof Irene Higginson. To read the article, click 'More' below.
We are delighted that the UCSC site in Rome led by Professor Giovanni Gambassi opened for recruitment! Thanks to all the BETTER-B team members that have helped to ensure the site is open and ready to randomise potential participants.
We are delighted to inform you that the WP1 survey paper has been accepted for publication in BMC Pulmonary Medicine. The paper is titled:
"Do guidelines influence breathlessness management in advanced lung diseases? A multinational survey of respiratory medicine and palliative care physicians".
We are delighted to let you know that our Solingen team in Germany led by Prof. Dr. Winfried Randerath have recruited and randomised their first Better-B participant! This brings the numbers recruited to 59 patients and 28 caregivers.
We are delighted to inform you that our December newsletter has been released!
You can find the newsletter, which includes updates on recruiting, here.
We are delighted to let you know that our AUSL Correggio team in Italy led by Dr. Mirco Lusuardi have recruited and randomised their first Better-B participant! This brings the numbers recruited to 55 patients and 27 caregivers.
Our AUSL site in Santa Maria Nuova has successfully randomised and recruited three patients already!
We are pleased to announce that our site at Santa Maria Nuova is now open, and can begin to randomise eligible patients to participate in the BETTER-B main trial!
The European Lung Foundation have published an article promoting the Better-B trial to all eligible readers experiencing COPD or ILD. We hope this will help us reach a wider audience than previously possible, and help offer the trial and resources to a greater number of people living with chronic breathlessness.
We’re delighted to say that our recently opened site in Cologne has recruited and randomised their first patient!
The BETTER-B project has now recruited 32 patients and 14 caregivers across all sites!
Congratulations to the team at Solingen Centre for Sleep and Respiratory Medicine, who are now open to initiate recruitment to the Better-B study!
The BETTER-B project has now recruited 27 patients and 10 caregivers across the UK, Germany, and Ireland!
The first BETTER-B Main Trial Recruitment E-newsletter has been published, reporting on our targets and the number of patients recruited over the six sites open in the UK, Ireland and Germany. Congratulations to the teams in Munich and at King's College Hospital who recruited the most participants in July 2021!
The BETTER-B project has now recruited 20 patients and 7 caregivers across sites in London, Nottingham, Hull, Dublin, and Munich!
We have now our second site in Germany successfully open, with Cologne following Munich!
In only a week after opening, our Munich site successfully randomised their first participant today!
We are pleased to inform that our site in Munich is now open, and can now begin to approach and randomise potentially eligible patients to participate in the BETTER-B main trial.
We’re delighted to say that our partners in Ireland have recruited their first patient!
Find out more about what we have achieved so far in 2021, how participants have perceived the BETTER-B programme so far and what we are working on at the moment!
Professor David Currow of the University of Technology Sydney assisted the American Society of Clinical Oncology in issuing a new guideline on the clinical management of dyspnea in adult patients with advanced cancer.
Our Australian partners have successfully opened their first 2 sites and randomised their first 2 participants.
Dr. Matthew Maddocks at King's College London has worked with the European Society for Medical Oncology to publish a new clinical practice guideline, aimed at aiding the management of breathlessness in patients with cancer.
We're delighted to let you know that the first BETTER-B trial participant has been recruited and randomised!
Find out more about the what we have achieved in the last six months, how COVID-19 has impacted our project and our mission and what we are working on at the moment.
Find out more about the what we have achieved in the last six months, how COVID-19 has impacted our project and our mission and what we are working on at the moment.
Imagine how it would feel to struggle every time you take a breath. This is the lived experience of people with severe, persistent breathlessness. Such breathlessness is often a symptom of people with advanced diseases such as cancer and lung disease.
In January 2020, the BETTER-B Feasibility main trial paper was published as a Brief Communication in Thorax. The BETTER-B Feasibility team were delighted to report that the trial successfully achieved its primary endpoint of recruiting over 60 (64 in total) patients in 3 sites over 1 year.
As we come to the end of the first year of the study, find out more about what we have achieved so far, and learn more about one of our partner leads.
We would like to thank all of you who took part in the online survey designed for respiratory and palliative care physicians from different European countries
The questionnaire, which was prepared with the help of experts from the European Respiratory Society and the European Association for Palliative Care was based on three case vignettes in COPD, lung cancer and interstitial lung disease.
Our aim was to explore the management of chronic breathlessness among european physicians and how to improve care for patients suffering from refractory breathlessness, including the collaboration between respiratory medicine and palliative medicine. More than 510 respondents completed the survey. We are now in the process of analyzing the results. Thank you very much for your participation!