Breathlessness Management

One of the main aims of the BETTER-B project consortium is directly improving the situation of people affected by chronic breathlessness. All of the involved partners have a history and proven record of accomplishment in research concerning breathlessness. For this reason, we have decided to create a comprehensive collection of resources, both patient- as well as clinician-focused, which aim to help alleviating the suffering caused by chronic breathlessness through means of direct action.

Please be aware that these resources were not conceived as part of the BETTER-B project, but represent past works from the BETTER-B partners on breathlessness.

Breathlessness Support Service Tool Kit (Cicely Saunders Institute, Kings College London, UK)

A collection of short, patient- and public-focused techniques on how to deal with breathlessness, ranging from exercises and techniques to be used during acute periods of breathlessness to tips which aim to prevent episodes of acute breathlessness.

Fact sheet: Managing breathlessness
Fact Sheet: Hand Held Fan
Fact sheet: Positional techniques
Fact sheet: Distraction techniques
Fact sheet: Sleep hygiene
Resource: Breathlessness poem

Free e-resource on Breathlessness Management for professionals (Cicely Saunders Institute, King's College London, UK)

Atemnotambulanz (Klinikum der Universität München, Germany)

A (German) breathlessness support service focused on providing innovative and comprehensive outpatient care for people suffering from refractory breathlessness.

Breathlessness blog and international resources (Hull York Medical School, UK)

Regular blog from breathlessness specialists based at Hull York Medical School.

Breathlessness Exhibition (Hull York Medical School, UK)

In collaboration with artists and local people living with breathlessness, Hull York Medical School have created the Bringing Breathlessness into View exhibition, which aims to raise awareness of what it is like to live with breathlessness, and enable people to access support to manage breathlessness well.

Holistic Breathlessness Services video (University of South Australia, Australia)

Short animated video about a holistic breathlessness service set in respiratory medicine with close links to palliative care